Rambles from a twisted mind
Its Friday again: Yes my friends you know how I love these.
I was at the specialist yesterday and my white cell count has dropped again, it is now really quite low and it is showing. I am a lot slower, more tired and have Staphylococcal Infections popping up on my body. It is annoying and painful but hey only 32 weeks to go!
It could be much worse. (I will continue to say that, smile)
The big thing for now is Balance.
I find the smallest of things upsetting, I question my validity in my relationship, I find it difficult to articulate what I feel and second-guess the legitimacy of any complaints I may have. The drugs really mess with my head.
I have had emotional struggles in the past but I have dealt with these silently and well. (Eventually)
Drugs (through treatment) have put me in a very vulnerable position emotionally and mentally. I find this the hardest to bear out of all my side affects; it puts a huge strain on everything. I am confused and guilt ridden by my massive mood swings and agitated state of mind.
I am very good at putting on a front for acquaintances and people over the phone (respectfully).
My family and relationship are struggling beneath my wavier of hesitation and indecisive behavior.
I am angry all the time (when I have the energy)
I cry at the drop of a hat and I want to pull out my already thinning hair through sheer frustration over what???
Nothing? Something? I don’t understand the problem, I just don’t fuken know anything and it sucks big time.
I am strong, I am outwardly confident; I am capable in the eyes of all who meet me.
The inside on the other hand, the part hidden away that doesn’t dare show her fear has almost reverted back into a confused and emotionally damaging state of mind that I haven’t dealt with for a very long, long time..
I was WARNED this is a long difficult road, physically demanding and emotionally draining.
I was WARNED that people with severe depression or a history of any mental health issues should not have this treatment. I can see why!!
I am not a depressive person with bi-polar nor do I consider that I could be classified as having a history of mental illness.
I have experienced trauma and emotionally testing times but I consider any depression symptomatic of a certain situation.
Knowing all this makes no difference trying to cope emotionally with this situation and it should.
I was WARNED I was PREPARED.
My lingering questions are????? Again through this are.........
Will my emotions reflect who I really am or used to be before treatment?
These drugs alter my thought process to a point where I don’t understand anything.
I cannot make decisions easily and I can’t even talk properly sometimes, my thoughts don’t match my mouth or my true heart. It is difficult to balance everyday life being a good mum and holding up my end of the responsibilities in my relationship.
My specialist assures me this is all-normal and will stop when treatment does.
Its hard on Ben as we share very different roles in our relationship. I am not holding up my end and he is struggling with both.
I am feeling a little withdrawn and confused and as most of my rants go I suppose this is no different, tomorrow’s another day.
I will probably reread this and think what a sook.
But this is my shit for today.
I have had my little bitch session so I will send you Love Peace and Health To you all.
Thinking of you all always. xxxx
13 Comments:
I don't want to undermine any of your completely valid ranting by convincing you to keep you chin up and stay strong. Sticking to this treatment must be utterly harrowing and you are so brave just to BE on it! 32 weeks is a very long time... judging by your archives it's just a little over the length of time that you've been blogging -and I bet that feels like it only started yesterday, right? :)
Everything you do, feel, say, think... is valid, Shaz love. I can't wait for the day when you end this treatment and the clouds thin out and shift out of your view and clear... your beautiful mind will be sharp again and you will look back with pride on your powers of endurance.
sending you peace and love, lovely.
Vxxx
HOney... FUCK!
You are well entitled to feel as you do!
DO NOT DIMINISH your feelings and your right to feel them... do not think you are ranting.
You are going through HUGE changes... its okay to have SHIT days... its okay to feel like crap at times.
I am just sorry that at times when we are on the phone.... you just dont spill it all out and tell me to SHUT UP for one second so you can be honest with how YOU are feeling and NOT always try to be brave.
I know you are going to be so much stronger for this experience and it will go soon... small steps, small focus, small goals.
(hugs) and love
Bx
Your feelings are real and yours to understand because you are the one going through them
Those that love you will understand and when all of this is over you could apologize for being a bitch at times but hey, you'll be better when the treatment is over and make up for it.
Your are the one that has to suffer at the moment, so everyone could live with it and be happy its not them going through what you are.
So go ahead and rant rant rant, It's your right
Have a nice day
You might feel like a sook???
Hell after reading that i'm acting like one.....tissues and all...
Ah sweetie, these side-effects (even after being warned) would take a huge toll on anyone. I think the fact that you are recognising this and aware of the impact, means that you (the strong, plucky you) is still in there fighting against this. I wish to hell you weren't going through this, but I'm glad as hell that you have a treatment option because I want us to be old grannies and I will be slippin' you the port! Ben is in a difficult role as caregiver, I hope he reads this and knows that you acknowledge the impact on him. I wish I could take a magic wand and wave all these troubles away, but for now all I can do is send my love to all of you.
Many hugs and much love to you, Shazzie. xx, Deb
sweet heart! so you were warned, but i think it's impossible to be prepared for something like this. i read this and kept going, "of course she's feeling like shit! of course she's tired and emotionally drained!"
you are completely valid for feeling whatever you are feeling in the moment. we don't want "extra shiny happy shazzie" we want you girl - however you are. i wish that you will have peace for a few moments today...
What everyone else has said!! Yeah, you were warned it would be bad but there's just No WAY anyone can know how they'll react to something until they're in it. You need to rant? We'll listen. Sending many good thoughts your way, Shaz~~~~~~~~
Every day brings you one step closer to recovery and the end of the nightmare so if you have to rant and rave as part of the process I say GO GIRL......
Sounds so rough, what you are going through...(((shaz))).
I hope you find some relief. What everyone has said are things I would say too. lots of hugs to you...
dd/sandy
cut your hair, babe. i know it might be scary, but it could be a part of you owning your illness. you are becoming a new person throughout this journey and perhaps this new person deserves a new style. (hugs)
Your ranting is purely justified, and one of the greatest things about this world of caring friends and writing partners is that we are here, all willing to listen, and lift you up in our thoughts and prayers.
Hoping for better days ahead for you...
Hey Shaz.....
thank you so much for your kind words on my latest post. often i write something, thinking i'm off my rocker only to find that i'm not alone.
I read your heart pouring here....and my heart fills for you.
keep writing, sweetie. let it all out.....especially on the shitty days. the writing will help you unravel the big feelings.....the ones that are too difficult to speak out loud.
take care.......thinking of you.
~I'll just second what the rest of your bloggie tribe is saying ~
*be gentle with yourself*
~Sending hugs and positive thoughts right your way~
Love x x x
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